[Editorial] Thalassaemia: advocacy, resilience, and adaptability

“The patient voice, especially when informed and reflective, can illuminate blind spots that data alone cannot,” writes Roanna Maharaj, a patient with β-thalassaemia, emphasising the importance of patients being active participants in decision making, and one of several articles on thalassaemia in this issue of The Lancet Haematology. That there are now multiple treatment options is a testament to the work that has gone into improving outcomes for patients in recent years and is also discussed in a Viewpoint that presents a prioritisation-based matrix for deciding how best to treat transfusion-dependent β-thalassaemia in settings with limited resources.